The Background
The Background!
Hi, If you are here reading this, you must have some interest in my new journey in life. In March of 2022, I discovered that I have ADPKD...
Thursday, January 11, 2024
I'm on the List!!
Great News! I got the call that I was approved to be put on the kidney transplant list! That's a huge sigh of relief. What does that mean? It means I am now going to be in the database for a possible kidney. This could still take 3-5yrs and I'll have to redo testing yearly and blood tests monthly. That's of course a nonliving donor. A living donor could take place faster.
In other health news, I have finally gotten through the most painful week of my life. That surgery was a 0/10 for recommendation. When I visited the surgeon, he wasn't sure why I was having pain where I was. He did give me a different pain med that helped and for the most part I'm off it now. I even made it through a 3 day festival (5 days for me) of very long hours. Thankfully I just keep a chair warm most of it and was able to move when needed. I'll be honest, I wasn't sure how that was going to go. It's a festival/conference with over 1800 people and I'm pretty involved in the planning/running of it - which I love doing. And thankfully I did not seem to come home with the illnesses that seemed to be rampant while there.
I had my first flush of my new tube and will do that weekly till I start dialysis. I'm still hopeful we can push that off a little longer, but thinking it probably won't be long. My surgery site has to heal all the way so I should have a couple weeks.
I know some people have asked about being tested/looking into donating a kidney. I can't even tell you how much that means. I will do a little blog about that in the next couple days about how to go about it. But I could never ask anyone to do that for me, so don't ever feel obligated or like you have to. It's a HUGE thing to do and I know I could never repay that kindness.
BTW my car was totalled and I'm getting a nice sum for it that will cover the loan and a down payment. I basically wrote an email begging for communication and suddenly it got done by the end of that day. Now to wait for the funds to come through, which also seems very slow. That was a week ago I signed papers. Thankfully I have a real nice Dad that is willing to take me places and let me steal the car next week when I start driving again.
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