The Background

The Background!

 Hi, If you are here reading this, you must have some interest in my new journey in life.   In March of 2022, I discovered that I have ADPKD...

Monday, July 28, 2025

Why does summer time go so fast?

Well, summer is almost over. I go back in less than two weeks. This has probably been one fo the most uneventful summers ever. Honestly, we've spent most of it at home. My daughter plays with neighbor kids almost all day and I get nothing accomplished. She's having a wild child summer.  Friend time has been extremely limited this summer. We do have a couple fun things this week, but honestly that is it. She did get to go to camp last week and swam in the lake.  She was very excited about that.


 I had my yearly meeting with St Luke's Transplant team, now all the testing will happen again. They said it will still probably be at least two more years before I get a transplant, unless I find a live donor. In the meantime, I feel like I'm withering away. I've had an infection almost all summer. I find out later this week if it's still there. Thanksfully, it has only meant a few days of true pain. I have felt drained though all summer and my motivation is slim to none. I'm pretty sure I have another hernia, but so far it's not to bad. I can no longer regulate my tempature. I either am hot or cold constantly and it changes every minute or so. My newest horrid symptom is my skin hurts. My arms and top of my back are painful if anything touches it. Overall the numbers of my diet intake have been ok, except I apprently don't eat enough protein. Now I'm supposed to drink this stuff every few days to get more....but it's gross and I keep forgetting. My actual kidney function is down to 6%. 
 While I hate my machine, I know I'm lucky to be able to do it at home and to still be able to do things. While exhaustion, loss of motivation, and some bad days...over all I'm lucky. I am trying to be better about limiting myself and knowing when I have to say enough. Mostly I've just felt blah all summer. I'm not sure how I feel about going back to work, but it's coming anyway. I have new bosses again....so that adds a level of anxiety.
We moved our ducks a week ago. I'm really proud of my kid for how well she took care of them for those 6 weeks. It was definately time for them to move...but it was fun to watch them grow. And she will probably always remember doing this. She wants to work with animals- like a rescue or something so it was good practice.

I did see many of my closest friends this week so that was fun.  I got to do.an escape room for the first time.   We accomplished the mission in really good time.   I'm very thankful for the friends that put up with me.

Please continue to send prayers and good thoughts my way.   All the little things make such a differece.  I appreciate everyone who has supported me in any way.   I hope everyone is finding some joy in each day and finding ways to stay cool.

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